Online Survey to Know Current Needs in Rare Bone Conditions

As part of the Call to Action project, the European Rare Bone Forum (ERBF) is conducting an online survey to understand the current unmet needs in rare bone conditions, the challenges that exist in research, and potential solutions to overcome these barriers. Participate by February 6, 2023.

Who can participate:

• Person who has a rare bone condition
• Family member/caregiver of person with a rare bone condition
• Healthcare professional
• Researcher or academic related to this field
• Industry representative
• Policy maker or political representative
• Patient organization representative

ERBF is a Forum led by people with rare bone conditions aiming to discuss ways to empower this community in Europe. Learn more here. The survey is available in 5 languages (English, French, German, Italian and Spanish), takes less than 10 minutes to complete, and all responses are anonymous.