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Questionário sobre acondroplasia
Desenhámos um questionário com o objetivo de conhecer a população ligada à acondroplasia.
O questionário é opcional e anónimo. Os dados obtidos serão usados para cálculos estatísticos e para perceber melhor a história natural da acondroplasia.
Se quiser preencher este questionário mais tarde, basta clicar no link no topo "Registe-se no BA"

11th International Conference on Children's Bone Health | 22-25 Jun 2024

2024-03-21Events
This important event brings together scientists, clinicians and health professionals from a wide range of specialties with the aim of better understanding the growing skeleton in the context of childhood health and illness.

16th ISDS International Skeletal Dysplasia Society Meeting | 18-21 SEP 2024

2024-03-21Events
The 16th Meeting of the International Skeletal Dysplasia Society will take place in Madrid, between September 18th and 21st, 2024. This meeting takes place every two years in a friendly and familiar environment to promote networking and the sharing of specialized knowledge.

3rd ICCBH-BOND ERN International Achondroplasia Workshop

2024-05-06Events
An ICCBH 2024 pre-conference workshop will be held on June 22, 2024 (Salzburg, Austria). This event will focus on "Pathologies of the long bones in children with achondroplasia".

Webinar | QED Clinical Development Program Update

2024-09-02Events
ANDO Portugal will be holding a Webinar with QED Therapeutics on 24 September at 6pm (UTC/GMT +1) as part of an innovative series focused on new treatments for skeletal dysplasias.

Workshop: Orthopaedic interventions in achondroplasia | 29 Oct 2024 | 14–17h CET

2024-10-04Events
Registration for the fall EAF (European Achondroplasia Forum) workshop is now open! Dr. Philip Kunkel (President of the EAF) will be joined by a group of experts who will explore orthopaedic interventions in achondroplasia. WORKSHOP Orthopaedic interventions in achondroplasia: Identifying optimal care for improved outcomes Tuesday, October 29, 2024 | 14:00-17:00 (CET) The main topics of this workshop will include the possibility of preventing orthopedic interventions, common problems with […]
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Obrigado.