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Questionário sobre acondroplasia
Desenhámos um questionário com o objetivo de conhecer a população ligada à acondroplasia.
O questionário é opcional e anónimo. Os dados obtidos serão usados para cálculos estatísticos e para perceber melhor a história natural da acondroplasia.
Se quiser preencher este questionário mais tarde, basta clicar no link no topo "Registe-se no BA"

15th Skeletal Dysplasia Society Meeting | 24 - 27 Aug 2022

2022-02-17Events
The ISDS organizes meetings on a two-year basis to promote networking and exchange of expertise. In 2022, the 15th Meeting will be held for the first time in Latin America, in Santiago (Chile) on August 24 - 27.

ECTS Congress 2022 | 7 - 10 May

2022-02-17Events
The European Calcified Tissue Society (ECTS) 2022 Congress will be held in Helsinki, from 6-10 May.

10th Int. Conference on Children’s Bone | 2-5 July 2022

2022-02-17Events
The 10th International Conference on Children's Bone Health will be held on 2-5 July 2022, in the lively Irish city of Dublin, and will be a unique networking opportunity.

Detection and Management of Foramen Magnum Stenosis in Achondroplasia 

2022-03-16Events
WORKSHOP Detection and Management of Foramen Magnum Stenosis in Achondroplasia  Wednesday 6 April 2022 17:00–20:00 CET Workshop Chair, Melita Irving, is joined by Klaus Mohnike, Geneviève Baujat, Paul Arundel, Philip Kunkel, and Heike Hoyer-Kuhn to discuss screening, indicators for intervention, the decision-making process to decompress and strategies for previously undetected foramen magnum stenosis. This workshop seeks to develop and gain consensus on overarching considerations. E […]

ERN BOND Webinar: Human Body Movement & Scan Analyses

2022-03-23Events
ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.

ERBF Sponsored Educational Symposium at ECTS Congress

2022-04-22Events
The European Rare Bone Forum (ERBF) is a patient-led Forum and networking arena between Patient Organisations, Scientific Societies and Industry working in Rare Bone conditions. Inês Alves, founder of Beyond Achondroplasia, and President of ANDO Portugal is a member of ERBF. The ECTS Congress is the annual event of the European Calcified Tissue Society (ECTS), the major organisation in Europe for researchers and clinicians working in the musculoskeletal field. that acts as a forum […]
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Obrigado.