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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

Achondroplasia Academy 2022 | 7-9 June | Lisbon

2022-05-31Events
The BioMarin medical team is delighted to invite health professionals to join an expert faculty in a 1.5-day meeting in Lisbon to discuss and debate themes relevant to the lifetime perspectives of people with achondroplasia. This event works by direct invitation only and is exclusive for health professionals (HCP).

ERBF Sponsored Educational Symposium at ECTS Congress

2022-04-22Events
The European Rare Bone Forum (ERBF) is a patient-led Forum and networking arena between Patient Organisations, Scientific Societies and Industry working in Rare Bone conditions. Inês Alves, founder of Beyond Achondroplasia, and President of ANDO Portugal is a member of ERBF. The ECTS Congress is the annual event of the European Calcified Tissue Society (ECTS), the major organisation in Europe for researchers and clinicians working in the musculoskeletal field. that acts as a forum […]

ERN BOND Webinar: Human Body Movement & Scan Analyses

2022-03-23Events
ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.

Detection and Management of Foramen Magnum Stenosis in Achondroplasia 

2022-03-16Events
WORKSHOP Detection and Management of Foramen Magnum Stenosis in Achondroplasia  Wednesday 6 April 2022 17:00–20:00 CET Workshop Chair, Melita Irving, is joined by Klaus Mohnike, Geneviève Baujat, Paul Arundel, Philip Kunkel, and Heike Hoyer-Kuhn to discuss screening, indicators for intervention, the decision-making process to decompress and strategies for previously undetected foramen magnum stenosis. This workshop seeks to develop and gain consensus on overarching considerations. E […]

10th Int. Conference on Children’s Bone | 2-5 July 2022

2022-02-17Events
The 10th International Conference on Children's Bone Health will be held on 2-5 July 2022, in the lively Irish city of Dublin, and will be a unique networking opportunity.

ECTS Congress 2022 | 7 - 10 May

2022-02-17Events
The European Calcified Tissue Society (ECTS) 2022 Congress will be held in Helsinki, from 6-10 May.
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