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Encuesta sobre la acondroplasia
Hemos diseñado un cuestionario con el objetivo de conocer la población afectada o cercana a la acondroplasia.
El cuestionario es opcional y anónimo. Los datos obtenidos serán usados para cálculos estadísticos y para poder tener una mejor percepción sobre la historia natural de la acondroplasia.
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31th Jan 2021

Johannes is a 12 years old boy from Sweden and his father wanted to share his experience to say that if there is a will, there is a way.

"My son started to play the violin 4 years ago, and in the first lesson, his violin teacher told me that he would never play in a Symphony Orchestra because of his diagnosis. After 1 year of playing the violin, Johannes started to have classes with a new teacher who believed in him. Now, Johannes plays in 3 Symphony Orchestras! In two of the Orchestras, he plays the first violin and in one he plays the second violin. The best of all is that Johannes plays together with his first violin teacher who said that he would never play in an orchestra."


These videos were recorded during Christmas 2020, during the COVID-19 pandemic.

Johannes

 
See Johannes videos here:
 

Video 1 - Chanson triste, Tchaikovsky

 

Video 2 - Bamboo Stem and Jasmine Flower, Trad. Chinese 

 


Enjoy the music, pursue your dreams. But is important to say that the will to do something may not always enough. Finding the right person to pursue that will or dream with you, a teacher, a trainer, is also very important. Keep on going until you find the right person at your side. 

 

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Muchas gracias.