When there is a will, there is a way!
2021-01-31Global
Johannes is a 12 years old boy from Sweden and his father wanted to share his experience to say that if there is a will, there is a way.
Interview study to pilot test a survey on children's and parent's experience with achondroplasia
2020-05-15Global
The Brod Group, a science-based health outcomes research group based in the USA, is conducting an interview study for a new survey on achondroplasia. Children with achondroplasia living in the USA, aged 9 or 10 yo are being invited to participate.
Это новая версия Beyond Achondroplasia - многоязычной платформы об ахондроплазии
2018-09-08Global
Beyond Achondroplasia сейчас преобразуется в мультиязычную платформу с новым дизайном и структурой. Мы запускаем эту платформу на испанском, португальском и русском языках. Теперь найти нужные сведения об ахондроплазии будет легче.
