Johannes is a 12 years old boy from Sweden and his father wanted to share his experience to say that if there is a will, there is a way.

The Brod Group, a science-based health outcomes research group based in the USA, is conducting an interview study for a new survey on achondroplasia. Children with achondroplasia living in the USA, aged 9 or 10 yo are being invited to participate.

Ascendis Pharma shared some notes due to the COVID-19 pandemic with patient organizations advocating for achondroplasia to inform patients and families.

Update for European Achondroplasia Associations 8 April 2020 BioMarin is providing this statement to provide general information about the company's clinical development program for achondroplasia in the context of the COVID-19 (Coronavirus) pandemic. "As more cases of COVID-19 are confirmed, we recognize the increased challenges and concerns faced by participants in the BioMarin clinical studies. The safety and well-being of study participants, healthcare providers, and our communities is par […]

Pfizer is pausing for three weeks the recruitment portion of the company's new and ongoing global interventional clinical studies.

QED is actively assessing the impact that COVID-19 may have on the work in place and wants to assure patients and families that they are committed to moving forward with the program to develop Infigratinib as an option for children with achondroplasia.