The Brod Group, a science-based health outcomes research agency, is leading a multinational research project on achondroplasia. A web-based/online survey has been prepared and parents from multiple countries are invited to participate.

Johannes is a 12 years old boy from Sweden and his father wanted to share his experience to say that if there is a will, there is a way.

The Brod Group, a science-based health outcomes research group based in the USA, is conducting an interview study for a new survey on achondroplasia. Children with achondroplasia living in the USA, aged 9 or 10 yo are being invited to participate.

Ascendis Pharma shared some notes due to the COVID-19 pandemic with patient organizations advocating for achondroplasia to inform patients and families.

Update for European Achondroplasia Associations 8 April 2020 BioMarin is providing this statement to provide general information about the company's clinical development program for achondroplasia in the context of the COVID-19 (Coronavirus) pandemic. "As more cases of COVID-19 are confirmed, we recognize the increased challenges and concerns faced by participants in the BioMarin clinical studies. The safety and well-being of study participants, healthcare providers, and our communities is par […]

Pfizer is pausing for three weeks the recruitment portion of the company's new and ongoing global interventional clinical studies.