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Encuesta sobre la acondroplasia
Hemos diseñado un cuestionario con el objetivo de conocer la población afectada o cercana a la acondroplasia.
El cuestionario es opcional y anónimo. Los datos obtenidos serán usados para cálculos estadísticos y para poder tener una mejor percepción sobre la historia natural de la acondroplasia.
Por favor, considere e intente responder. Si usted desea responder a las preguntas más tarde, puede presionar el botón en la parte superior "Inscribirse en BA"

Workshop - Managing Achondroplasia into Adulthood - 12 Oct 2021

2021-09-24Events
The European Achondroplasia Forum is a network of senior clinicians and orthopaedic surgeons from Europe and the Middle East representative of the achondroplasia clinical community. We will be holding a workshop on 12th October to discuss the process of transition of care from paediatric to adult services and how achondroplasia is managed in adulthood.

First Achondroplasia.expert Webinar

2021-10-13Events
Join the first Achondroplasia.expert webinar today at 5pm Central European time   — Evolving Achondroplasia Care: Relationship Between Height and Quality of Life...

World Orphan Drug Congress 2021

2021-11-05Events
The World Orphan Drug Congress 2021, now recognised as the largest and most established multi-stakeholder rare disease meeting, will take place on November 15 - 18 in Sitges (Barcelona), Spain.

Rare Bone Disease Summit 2021 - 6 and 14 Dec

2021-12-06Events
The RBD Summit 2021 (December 6 and 14) is the first edition of a global multi-stakeholder group meeting that aims to provide a platform to enable contributors working in the rare bone disease field to collaborate towards improving the lives of people living with these conditions.

15th Skeletal Dysplasia Society Meeting | 24 - 27 Aug 2022

2022-02-17Events
The ISDS organizes meetings on a two-year basis to promote networking and exchange of expertise. In 2022, the 15th Meeting will be held for the first time in Latin America, in Santiago (Chile) on August 24 - 27.

ECTS Congress 2022 | 7 - 10 May

2022-02-17Events
The European Calcified Tissue Society (ECTS) 2022 Congress will be held in Helsinki, from 6-10 May.
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