Esta página web usa cookies. ¿Acepta usted el uso de cookies externos? No Saber más x
Encuesta sobre la acondroplasia
Hemos diseñado un cuestionario con el objetivo de conocer la población afectada o cercana a la acondroplasia.
El cuestionario es opcional y anónimo. Los datos obtenidos serán usados para cálculos estadísticos y para poder tener una mejor percepción sobre la historia natural de la acondroplasia.
Por favor, considere e intente responder. Si usted desea responder a las preguntas más tarde, puede presionar el botón en la parte superior "Inscribirse en BA"

10th Int. Conference on Children’s Bone | 2-5 July 2022

The 10th International Conference on Children's Bone Health will be held on 2-5 July 2022, in the lively Irish city of Dublin, and will be a unique networking opportunity.

Detection and Management of Foramen Magnum Stenosis in Achondroplasia 

WORKSHOP Detection and Management of Foramen Magnum Stenosis in Achondroplasia  Wednesday 6 April 2022 17:00–20:00 CET Workshop Chair, Melita Irving, is joined by Klaus Mohnike, Geneviève Baujat, Paul Arundel, Philip Kunkel, and Heike Hoyer-Kuhn to discuss screening, indicators for intervention, the decision-making process to decompress and strategies for previously undetected foramen magnum stenosis. This workshop seeks to develop and gain consensus on overarching considerations. E […]

ERN BOND Webinar: Human Body Movement & Scan Analyses

ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.

ERBF Sponsored Educational Symposium at ECTS Congress

The European Rare Bone Forum (ERBF) is a patient-led Forum and networking arena between Patient Organisations, Scientific Societies and Industry working in Rare Bone conditions. Inês Alves, founder of Beyond Achondroplasia, and President of ANDO Portugal is a member of ERBF. The ECTS Congress is the annual event of the European Calcified Tissue Society (ECTS), the major organisation in Europe for researchers and clinicians working in the musculoskeletal field. that acts as a forum […]

Achondroplasia Academy 2022 | 7-9 June | Lisbon

The BioMarin medical team is delighted to invite health professionals to join an expert faculty in a 1.5-day meeting in Lisbon to discuss and debate themes relevant to the lifetime perspectives of people with achondroplasia. This event works by direct invitation only and is exclusive for health professionals (HCP).


The 15th International Skeletal Dysplasia Society Meeting will be held in Santiago, Chile, on August 24 - 27, 2022. This meeting happens on a two-year basis and is conducted in a friendly and familial environment to promote networking and sharing of expertise.
Para ver esta página web usted necesita de Internet Explorer 8 (o una versión más reciente)
u otro browser.

Muchas gracias.