Highlights on the 6th International ALPE Congress on Achondroplasia & Other Dysplasias
2018-10-23Global
One of most relevant events on achondroplasia was held by ALPE Foundation (based in Spain), on the 12,13 and 14th October 2018, bringing together leading healthcare experts in dysplasias, pharmaceutical companies, patient organizations, and more than 500 participants.
This is the new Beyond Achondroplasia - a multilingual platform
2018-06-23Global
Beyond Achondroplasia is now converted into a multilanguage platform, with a new image and structure. We are launching it in English, Spanish, Portuguese and Russian. It will now be easier to find the information you need about achondroplasia.
European Patient Advocacy Groups (ePAG) Registration Form for Patient Organisations
2016-11-24Global
EURORDIS is calling for patient organizations to join the European Patient Advocacy Groups. Learn more about them and how to apply here.
Funding opportunities for projects dedicated to children with rare diseases
2016-04-12Global
There are several funds and foundations that fund projects for children with rare diseases. Here is a list of some of them, as well as what their aims are and their deadlines.
