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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"
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European Patient Advocacy Groups (ePAG) Registration Form for Patient Organisations

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  • European Patient Advocacy Groups (ePAG) Registration Form for Patient Organisations

EURORDIS has published a call for patient organisations to join the European Patient Advocacy Groups (ePAGs). There is an ePAG for each ERN project proposal/thematic area of expertise of ERNs. Patient representatives from any European Patient organisation (member or non member of EURORDIS) are called to join the ePAG and fill in the EPAG Matchmaker tool here.


Join the ePAGs to connect with the ERN patient community

EURORDIS Guide for Patient Advocates in ERNs

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