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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"
Beyond Achondroplasia is now converted into a multilanguage platform, with a new image and structure. We are launching it in Spanish, Portuguese and Russian.

Beyond Achondroplasia changed its image and organization for your convenience. It will now be easier to find the information you need about achondroplasia by using the menus on top. Learn more about our website's structure and features below.

We hope you have a good experience on the new website. Contact us with your suggestions and questions by sending an e-mail through This email address is being protected from spambots. You need JavaScript enabled to view it..

You can also subscribe to the newsletter and receive notifications about new content as soon as it is published.


Features of the new website

Check the Library for a Glossary on technical terms and find the most recent scientific papers published about achondroplasia. Some are fully available on their parent website. You can use our search engine to find them, by typing [Free Full Text]!
The latest News and Events on several subjects will be posted here and information about available treatments, therapies and health guides will be constantly updated in the Health section. You will also find the latest information on new emergent treatments, such as vosoritide or TA-46, what is known about them and what studies are under development here.

Also, if you are looking for patient groups, medical reference centers or research centers, see the Resources section. In this section, you will also find possible adaptations for your daily life.
And you still can access the original Beyond Achondroplasia blog in the Social section, here.

Share your opinions and experiences through our Forum and learn from other people all around the world and help the general community by registering to our website and answering a survey (here or on the top of the screen) that will help map the world of achondroplasia: where people, experts and specialist healthcare providers are in the world. This data may also be anonymized and used in research and investigation.

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