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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"
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Mission

Beyond Achondroplasia was created in April 2013 with the central goal to inform all people interested in achondroplasia about this rare condition. It started as a collection of the most up-to-date scientific information, adding an explanation of complex concepts to facilitate the understanding because the right of access to information must be universal.

The name of the blog had to include achondroplasia and after some time, "Beyond" sounded the best word to explain the project that was being created: going beyond the condition, beyond borders, beyond all challenges and to reach beyond ourselves.

The stimulus to create the blog was my daughter Clara, who was born with achondroplasia in August 2012, after realizing there was a lack of accessible, useful, reliable and precise information on achondroplasia. Beyond Achondroplasia also presented Clara's evolution, milestones achievements and complications related to achondroplasia.

Beyond Achondroplasia has now been converted into a website, funded by a grant, and is structured in several areas that we invite you to discover: a library, a forum and other sections such as news or resources, approaching diverse themes from medicine, biology, therapies, scientific research, social and others. In a second phase, all the information will be made available in other languages.

This website was built for you and we hope that you can find the information you need in Beyond Achondroplasia.

Inês Alves
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