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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

Workshop on Foramen Magnum Stenosis in Children with Achondroplasia - ICCBH

2019-04-15Medicine
Inês Alves, Beyond Achondroplasia and ANDO Portugal founder, is representing the patients and contributing to the rare bone disease section of the 9th International Conference on Children's Bone Health as a member of a working group who organized this event by organizing a pre-meeting workshop.

Pregnancy With Achondroplasia

2018-01-18Medicine
Pregnancy with achondroplasia may be scary: breathing during the third trimester may not be easy, cesarean section is inevitable, and anesthesia can be complicated. However, some of these complications may be minimized. Here we present two case reports of pregnant women with achondroplasia who delivered two healthy babies.
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