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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"
4 Feb 2020

In December 2019, EMA conducted a public hearing to evaluate achondroplasia treatment plan. This news was shared in Beyond Achondroplasia which you can read here. Now, EMA shared a Thank you note, which we want to share. Having more than 100 individuals participating is very relevant and shows that the development of medicine is of public interest. Thank you for your collaboration.

Thank you note EMA

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Thank You.