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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"
The Paediatric Committee (PDCO) at the European Medicines Agency (EMA), is currently evaluating the development plans for a proposed treatment for achondroplasia.
The PDCO would like to reach out to patients or carers living in EUROPE to gather their experiences of living with achondroplasia, as well as their expectations in terms of benefits and risk-acceptance for potential new treatment. This will help PDCO to better understand, and take into consideration, patients' views and needs.

If you live in Europe and have achondroplasia or are a caregiver of a child with achondroplasia, answer and share this questionnaire (only available in English)

The deadline for responses is 22 January 2020

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