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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

The Sunnaas Rehabilitation Hospital is conducting an observational study on the prevalence of medical complications in adults with achondroplasia and their impact on daily activities entitled "The Norwegian Adult Achondroplasia Study".

 

They are recruiting 50 participants over 16 years of age diagnosed with achondroplasia and will look into the degree and extent of several complications and symptoms associated to this condition, as well as their impact on physical function, work participation, social benefits and need for assistive devices (wheelchairs, hearing aids, etc.).

 

This study is being conducted in collaboration between the Norsk Interesseforening for Kortvokste - NiK (Little People of Norway), TRS National Resource Centre for Rare Disorders, Lovisenberg Diakonale Hospital, and Oslo University Hospital.

 

Study Type: Observational
Estimated Enrollment: 50 participants
Observational Model: Ecologic or Community
Time Perspective: Cross-Sectional
Official Title: The Norwegian Adult Achondroplasia Study
Actual Study Start Date: March 1, 2017
Estimated Primary Completion Date
February 28, 2019
Estimated Study Completion Date: December 31, 2021

 

Locations

Norway    
Sunnas Rehabilitation Hospital   Nesoddtangen, Akershus, Norway, 1450  Recruiting

 

 

Contact: Vegard Strom, PhD This email address is being protected from spambots. You need JavaScript enabled to view it.
  Grethe Maanum, PhD 91776982 ext +47
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Learn more about this study at ClinicalTrials.gov.

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