The Norwegian Adult Achondroplasia Study
The Sunnaas Rehabilitation Hospital is conducting an observational study on the prevalence of medical complications in adults with achondroplasia and their impact on daily activities entitled "The Norwegian Adult Achondroplasia Study".
They are recruiting 50 participants over 16 years of age diagnosed with achondroplasia and will look into the degree and extent of several complications and symptoms associated to this condition, as well as their impact on physical function, work participation, social benefits and need for assistive devices (wheelchairs, hearing aids, etc.).
This study is being conducted in collaboration between the Norsk Interesseforening for Kortvokste - NiK (Little People of Norway), TRS National Resource Centre for Rare Disorders, Lovisenberg Diakonale Hospital, and Oslo University Hospital.
| Study Type: | Observational |
| Estimated Enrollment: | 50 participants |
| Observational Model: | Ecologic or Community |
| Time Perspective: | Cross-Sectional |
| Official Title: | The Norwegian Adult Achondroplasia Study |
| Actual Study Start Date: | March 1, 2017 |
| Estimated Primary Completion Date: |
February 28, 2019 |
| Estimated Study Completion Date: | December 31, 2021 |
Locations
| Norway | ||
| Sunnas Rehabilitation Hospital | Nesoddtangen, Akershus, Norway, 1450 | Recruiting |
| Contact: | Vegard Strom, PhD | This email address is being protected from spambots. You need JavaScript enabled to view it. |
| Grethe Maanum, PhD | 91776982 ext +47 This email address is being protected from spambots. You need JavaScript enabled to view it. |
Learn more about this study at ClinicalTrials.gov.
