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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

There are more than 7000 languages in the world, but we need the be able to read and understand the same document when this is translated. There is a need to find the support of parents from Austria and German-speaking Switzerland to review the translation and linguistic aspects of a questionnaire on achondroplasia.

A language is, fundamentally, a collection of dialects that are mutually intelligible. Each dialect is a collection of idiolects that are similar enough to be classified together. An idiolect is a single speaker’s version of a language. For example, an Irish person speaks his own idiolect of English, just others speak with a slightly different one. Yet, since English speaking people can understand each other, it can be defined as a single language.

If you are a parent of a child with achondroplasia between 1,5 and 11 years old and you live in Austria and German-speaking Switzerland, participate in this project. The project has been already completed in the USA, Canada, Germany, UK, Norway, Australia, New Zealand, Mexico, Portugal, Spain, Ireland, French Switzerland, and Poland. By now, 65 parents from 13 countries have collaborated.

This is a multinational project for a linguistic validation of a questionnaire about achondroplasia. It has been translated into 8 languages and in this stage, is key to confirm that the translation is accurate, and we are looking for a group of 5 parents in each country, to review the translation accordingly each country appropriate cross-cultural wording. Parents will not be asked to reply to the questionnaire.  

Parents' collaboration will include a 1-hour phone call with a local moderator in their native language. The interviews will be scheduled accordingly parents availability.

comunicare parlare differenze
The countries and languages are the following:

Country Language
Australia English
UK English
New Zealand English
Ireland English
Bulgaria Bulgarian
Germany German
Mexico Spanish
Norway Norwegian
Portugal Portuguese
Switzerland French
USA Spanish
Switzerland German
Austria German

For the time and life experience in achondroplasia, parents that participate will receive an honorarium. If you want to collaborate, please send an email to This email address is being protected from spambots. You need JavaScript enabled to view it. with the subject "Validation questionnaire participation" for further information.
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