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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"
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Online Survey to Know Current Needs in Rare Bone Conditions

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As part of the Call to Action project, the European Rare Bone Forum (ERBF) is conducting an online survey to understand the current unmet needs in rare bone conditions, the challenges that exist in research, and potential solutions to overcome these barriers. Participate by February 6, 2023.

Who can participate:

  • Person who has a rare bone condition
  • Family member/caregiver of person with a rare bone condition
  • Healthcare professional
  • Researcher or academic related to this field
  • Industry representative
  • Policy maker or political representative
  • Patient organization representative


ERBF is a Forum led by people with rare bone conditions aiming to discuss ways to empower this community in Europe. Learn more here. The survey is available in 5 languages (English, French, German, Italian and Spanish), takes less than 10 minutes to complete, and all responses are anonymous.


Access the survey in your preferred language using the links below:
English French German Italian Spanish



More information about the "Call to Action" project can be found on the ERBF website, here.
 
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