This web site uses cookies. Do you accept the use of external cookies? Yes No Know more x
Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

eaf top

The EAF is a network of achondroplasia specialists


The aim of the European Achondroplasia Forum (EAF) is to improve overall care for individuals with achondroplasia through establishing and promoting collaboration between experts, cross-country sharing of best practices, development of recommendations and supporting the development of educational programmes.


Workshops


The EAF holds Workshops called "Developments in Achondroplasia" that focus on particular areas of achondroplasia management. Experts are invited to lead discussions and share knowledge and experience.

The first workshop “Achondroplasia Management: Guiding Principles of Care” resulted in the publication of “The First European Consensus on the Principles of Management for Achondroplasia” in the Orphanet Journal of Rare Diseases. To view the discussions, download slides, or access the publication, click here.

The second Workshop "Managing Achondroplasia into Adulthood" discussed the process of transition from paediatric to adult care and how achondroplasia is managed in adulthood, as notice by Beyond Achondroplasia here.

 

To view this site you need Internet Explorer 8 (or a higher version)
or another internet browser.


Thank You.