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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

Therachon is conducting an observational study to investigate the characteristics of achondroplasia, such as average growth rate and disease progression, during childhood. They will be collecting information on the characteristics of this condition, its symptoms and what tests and treatments the patients go through. Being an observational study, no drug will be administered.


The company is recruiting 200 participants with achondroplasia from ages 0-10 years of age for the Observational Study Investigating Clinical & Anthropometric Characteristics of Children With Achondroplasia, who will be  observed for a maximum of 5 years and their medical records are going to be reviewed, in order to determine the characteristics and progression of the condition. Dreambird started in 2017 in Antwerp, Belgium.


The study details and locations are listed below.


Study contact: Alison Slade +41615513030
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Study Type: Observational
Estimated Enrollment: 200 participants
Observational Model: Case-Only
Time Perspective: Prospective
Official Title: A Multi-center, Prospective, Longitudinal, Observational Study to Investigate the Clinical and Anthropometric Characteristics of Children With the Diagnosis Achondroplasia.
Actual Study Start Date: June 15, 2018
Estimated Primary Completion Date: June 15, 2023
Estimated Study Completion Date: June 15, 2023


Location Address Recruitment status
United States, Delaware    

Alfred I. duPont Hospital for Children

Wilmington, Delaware, United States, 419803 Not yet recruiting
United States, Maryland    
The John Hopkins Baltimore, Maryland, United States, 21287 Not yet recruiting
United States, Massachusetts    
Boston Childrens Hospital Boston, Massachusetts, United States, 02115 Not yet recruiting
United States, Utah    
University of Utah Health Salt Lake City, Utah, United States, 84132 Not yet recruiting
Antwerp University Hospital Antwerp, Belgium, 2650 Recruiting
The Hospital for Sick Children Toronto, Canada Recruiting
Righospitalet Copenhagen, Denmark, 2100 Recruiting
Centre Hospitalier Universitaire La Timone Marseille, France, 13385 Not yet recruiting
Hopital Necker-Enfants Malades Paris, France, 75015 Not yet recruiting
 University Hospital of Cologne  Cologne, Germany, 50937  Recruiting
 Otto-von-Guericke- Universitat Magdeburg  Magdeburg, Germany, 39120  Recruiting
ASST Lariana Como Como, Italy, 22042 Not yet recruiting
IRCCS Istituto Giannina Gaslini Genova, Italy, 6147 Not yet recruiting
San Raffaele Hospital Milan, Italy, 20132 Not yet recruiting
Fondazione Policlinico Universitario A.Gemelli Rome, Italy, 00168 Not yet recruiting
Hospital Pediatrico de Coimbra Coimbra, Portugal, 3000-602 Not yet recruiting
Hospital Quironsalud Malaga Málaga, Spain Recruiting
United Kingdom    
Bristol Royal Childrens Hospital Bristol, United Kingdom, BS2 8BJ Recruiting
Guys & St Thomas NHS Trust London, United Kingdom, SE1 7EH Recruiting
Newcastle Hospital NHS Foundation Trust Newcastle, United Kingdom, NE1 3BZ Not yet recruiting
Sheffield Childrens NHS Foundation Trust Sheffield, United Kingdom, S10 2TH Recruiting


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