Science with no results shared
One very important issue around clinical trials and many research projects (many are funded by public money) is that, at the end, the data and results are not published.
In the site clinicaltrials.gov, when searching for studies in achondroplasia, it is possible to find 10 studies and, among those, 7 marked as completed. However, in none of these 7 studies, conducted by either renowned hospitals, well known institutions, pharmaceutical companies or individual researchers, were the results shared with the public.
This makes me wonder what the goal of these research projects is. And if the results were not published, what can be concluded?
Just as an example, in one of these 7 studies, it is possible to read the following:
| Study Status: | This study has been completed. |
|---|---|
| Estimated Study Completion Date: | May 2001 |
| Estimated Primary Completion Date: | No date given |
This is totally incompatible with good and clear science. The public and the patients have the right to see the results of all studies and it must be mandatory to post those results.
I have already contacted clinicaltrials.gov about this matter.
