The Daily Experience of People with Achondroplasia

"This study aimed at investigating the daily experience of adults with achondroplasia. From the perspective of positive psychology, the experience reported in work, family, and relationships was analysed to detect resources and opportunities for social integration and personal growth. Participants were ten women and eight men, members of AISAC–the Italian Association for the Knowledge and Study of Achondroplasia. Following a mixed method approach, quantitative data gathered through the Experience Sampling Method provided information on daily activities and their associated experience, while qualitative data obtained through the Flow Questionnaire and Life Theme Questionnaire enabled us to explore optimal experience and associated activities, participants’ present challenges and future goals. Results highlighted the role of work as a key resource to achieving well-being. Interactions with parents and siblings provided support and relaxation, while building one’s own family emerged as a major future goal. Participants associated socializing with highly positive experiences of involvement and creativity; however, they reported spending a large percentage of time alone. Findings suggested that challenging and qualified work opportunities are crucial in promoting the personal growth and social integration of persons with achondroplasia. Promoting socialization and removing social and communication barriers should be major issues for policy makers, health professionals, and associations."