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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

World Orphan Drug Congress 2021

2021-11-05Events
The World Orphan Drug Congress 2021, now recognised as the largest and most established multi-stakeholder rare disease meeting, will take place on November 15 - 18 in Sitges (Barcelona), Spain.

First Achondroplasia.expert Webinar

2021-10-13Events
Join the first Achondroplasia.expert webinar today at 5pm Central European time   — Evolving Achondroplasia Care: Relationship Between Height and Quality of Life...

Workshop - Managing Achondroplasia into Adulthood - 12 Oct 2021

2021-09-24Events
The European Achondroplasia Forum is a network of senior clinicians and orthopaedic surgeons from Europe and the Middle East representative of the achondroplasia clinical community. We will be holding a workshop on 12th October to discuss the process of transition of care from paediatric to adult services and how achondroplasia is managed in adulthood.

ANDO Portugal 2021 Congress

2021-07-27Events
The 1st ANDO Congress 2021 will take place on 11th and 12th September 2021 in the auditorium of the School of Education and Social Sciences of Leiria. Under the theme “Skeletal Dysplasias: The Person and the Society", the Congress will welcome international speakers, specialised in different areas related to skeletal dysplasias as achondroplasia and presenting on scientific research, clinical care and social studies, and will also address dimensions about the person and the family, with disc […]

BRS 2021 Online 28-30 June

2021-06-24Events
BRS 2021 Online will be a platform for a mix of cutting edge science in symposia including global speakers, oral communications, workshops and posters. 

Achondroplasia Research Conference - July 2-3, 2021

2021-06-19Events
The Chandler project, based in the US, organised the 3rd Conference on research topics related to achondroplasia. Expert physicians and researchers, leading treatments for achondroplasia will speak at this conference, a hybrid event. Check the event here
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