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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

ERN BOND Webinar: Human Body Movement & Scan Analyses

2022-03-23Events
ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.

Detection and Management of Foramen Magnum Stenosis in Achondroplasia 

2022-03-16Events
WORKSHOP Detection and Management of Foramen Magnum Stenosis in Achondroplasia  Wednesday 6 April 2022 17:00–20:00 CET Workshop Chair, Melita Irving, is joined by Klaus Mohnike, Geneviève Baujat, Paul Arundel, Philip Kunkel, and Heike Hoyer-Kuhn to discuss screening, indicators for intervention, the decision-making process to decompress and strategies for previously undetected foramen magnum stenosis. This workshop seeks to develop and gain consensus on overarching considerations. E […]

10th Int. Conference on Children’s Bone | 2-5 July 2022

2022-02-17Events
The 10th International Conference on Children's Bone Health will be held on 2-5 July 2022, in the lively Irish city of Dublin, and will be a unique networking opportunity.

ECTS Congress 2022 | 7 - 10 May

2022-02-17Events
The European Calcified Tissue Society (ECTS) 2022 Congress will be held in Helsinki, from 6-10 May.

15th Skeletal Dysplasia Society Meeting | 24 - 27 Aug 2022

2022-02-17Events
The ISDS organizes meetings on a two-year basis to promote networking and exchange of expertise. In 2022, the 15th Meeting will be held for the first time in Latin America, in Santiago (Chile) on August 24 - 27.

Rare Bone Disease Summit 2021 - 6 and 14 Dec

2021-12-06Events
The RBD Summit 2021 (December 6 and 14) is the first edition of a global multi-stakeholder group meeting that aims to provide a platform to enable contributors working in the rare bone disease field to collaborate towards improving the lives of people living with these conditions.
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