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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

Argentina


Asociación Civil Acondroplasia Argentina – ACONAR
(Civil Association Achondroplasia Argentina)


ACONAR
The Asociación Civil Acondroplasia Argentina (ACONAR for short) is the Argentinian patient organization, who's objectives are to raise awareness, give health and educational guidance and support to the families of people with achondroplasia, as well as to defend the rights of people with bone dysplasias in general.

Follow them on Facebook.



Bolívia


Asociación Personas Talla Baja Bolívia
(Bolivian Association for People With Dwarfism)


Associacion talla baja bolivia

This association represents people with dwrafism in Bolívia and as a main objective, they want to get everyone with dwarfism in Bolivia together and take action to improve their quality of life.

Follow them on Facebook.



Brazil


Associação de Nanismo do Estado do Rio de Janeiro - ANAERJ

(Rio de Janeiro State Dwarfism Association)


ANAERJ
This association means to end prejudice against people of short stature and to raise awareness for the difficulties endured by people of short stature in Brazil.

Follow them on Facebook.




Somos Todos Gigantes
(We Are All Giants)

 

somos todos gigantes brazil

Somos Todos Gigantes dedicates itself covering the news and creating awareness about dwarfism in Brazil, share updated information and influence national politics about creating an inclusive society.

Visit their website here.



Chile


Fundacion Acondroplasia Chile

(Achondroplasia Foundation of Chile)


This organization's main objectives are to end discrimination against people with achondroplasia, contribute towards research that may lead to treatments for achondroplasia, spread information about this disease in order to promote tolerance and equality, to promote meetings between people with achondroplasia and to defend their rights.

Follow them on Facebook.

 

Ecuador

 

Asociación Ecuatoriana de Personas de Talla Baja - AEPTB
(Ecuatorian Dwarfism Association)

 

asociacion ecuatoriana de personas de talla baja

This association aims join people with dwarfism together to share life experiences and help each other.

Follow them on Facebook.

 

Uruguay

 

Asociación Acondroplasia Uruguay

(Uruguayan Achondroplasia Association)

 

acondroplasia uruguayAsociación Acondroplasia Uruguay aims to inform people about all kinds of dwarfism causing skeletal dysplasias, although at first it was dedicated to achondroplasia.

Follow them on Facebook.

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