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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

BOND, the European Reference Network (ERN) on bone disorders aims to devleop patient-reported outcome and experience measures, in order to create guidelines for a better treatment and management of all rare bone diseases. It will result in the development of new therapeutics and in a faster access of afected patients to new studies. 

By also providing access for physicians to skill development through e-learning (eHealth and telemedicine platforms), along-side working visits, training courses and dissemination activities, BOND will also enable the reduction of diagnosis time, use of fewer innapropriate tests and more accurate diagnosis.

For more information, read the factsheet here.


Sangiori, L. ERN on Bone Disorders (ERN BOND). 2017  [cited European Commission 30/05/2017].
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