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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"
The IAF will be holding the workshop “Beyond Achondroplasia” on April 29th at 17:30 (CET). The event will be moderated by Dr. Svein Fredwall, from Sunnaas Rehabilitation Hospital (Norway). Interestingly, this workshop has the same name as our website.

Beyond Achondroplasia Workshop
Tuesday, April 29th | 17:30-10:30 (CET)

 

Register

 

This workshop will feature renowned experts and will address issues related to achondroplasia and related conditions (hypochondroplasia, Noonan syndrome, Turner syndrome, SHOX haploinsufficiency and osteogenesis imperfecta):

  • an overview of follow-up
  • potential treatment targets
  • challenges associated with these conditions
  • ongoing clinical trials for these conditions

 

The IAF (International Achondroplasia Forum) is a network of experts in achondroplasia. Its aim is to promote collaboration between specialists, share best practices between countries, create recommendations and support the development of educational programs.

Take part in the discussion to increase your knowledge of achondroplasia and related conditions.
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Thank You.