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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"
12th ECRD 2024 | European Conference on Rare Diseases

ECRD is Europe's largest patient-led policy-making event for rare diseases. It brings together rare disease patients and their representatives, policy makers, healthcare industry representatives, doctors, regulators and member state representatives to shape the policies of the future for rare diseases.

With over 1000 participants, it is a unique opportunity to network and exchange valuable ideas within the rare disease community. The next ECRD, a hybrid conference, will take place on May 15 and 16, 2024 in Brussels at the Square Meeting Center.

ecrd 2024


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The European Conference on Rare Diseases is a biennial event organized by EURORDIS (a European alliance of rare disease patient advocacy associations) that brings together the best and most advanced in the rare disease environment, from research to the development of new treatments, from healthcare to social care and information, public health and support at European, national and regional level.
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