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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"
eaf event 2022

WORKSHOP

Detection and Management of Foramen Magnum Stenosis in Achondroplasia 

Wednesday 6 April 2022 17:00–20:00 CET

Workshop Chair, Melita Irving, is joined by Klaus Mohnike, Geneviève Baujat, Paul Arundel, Philip Kunkel, and Heike Hoyer-Kuhn to discuss screening, indicators for intervention, the decision-making process to decompress and strategies for previously undetected foramen magnum stenosis. This workshop seeks to develop and gain consensus on overarching considerations. EAF would love you to be part of the conversation, so please register to join.
 

 

Register

 
eaf ws for mag3x

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