This web site uses cookies. Do you accept the use of external cookies? Yes No Know more x
Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

Lucas is a 12 years old Spanish boy who is going through the lengthening process. This is a short film about one of his days.

He is brave. He makes others feel braver...

No need for translation.

 

Some words from Lucas, taken from his sister's blog:

"Five months have passed since I have these irons and you can't imagine the incredible will I have to remove them. They have told me that the intervention doesn't hurt anything. In June I will continue using a wheelchair for the bone to form properly, and in July and August I can start walking with the aid of crutches. I do not know if it will be easy or difficult, but I know I will have an incredible splash out.

It hurt less whenever I have to walk, it will change my habits, will no longer have to do daily treatment, I will have less fear of falling and more confidence in myself."
To view this site you need Internet Explorer 8 (or a higher version)
or another internet browser.


Thank You.