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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

Adaptations For The Car

2017-09-14Daily life
Adaptations you may need for your car in order to drive safely and in comfort.

Adapted Exercise Book

2017-11-13Daily life
For children with achondroplasia it may prove a challenge to reach the top of pages in an exercise book in order to write. For this problem, ALPE Foundation devised an adapted workbook, you can access through here.

Adapted School Chairs

2017-11-13Daily life
ALPE Foundation wrote a document on adapted chairs, with what is necessary for a child with achondroplasia, suggestions and several different results. The same adaptations can be made for an adult.

Creation of clothing line for bone dysplasias - Body measurements questionnaire

2020-01-19Global
A partnership between a patient organization with a textile professional from the north of Portugal is heading to create a clothing line for people with bone dysplasias/short stature.

School

2016-02-29Daily life
Adaptations that may be necessary for your child at school.

Toileting

2017-09-15Daily life
Adaptations due to the reduced length of the arms and legs, which may result in difficulties reaching the perineum, the toilet and the sink. Bathroom adaptations and a mechanical aid may be needed for toileting and/or bathing more comfortably.
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