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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

What do you think about Limb lengthening in achondroplasia? If you have not considered it, not done it, or you have, please share your opinion

This survey was developed jointly by experienced clinicians and representatives of organizations for people with achondroplasia. It is an initiative supported by the European Reference Network for rare bone diseases - ERN BOND and its objective is to understand the choices and experiences of people with achondroplasia regarding limb lengthening.

survey ll eng inst

The survey is available in several languages, including English, Portuguese, Polish, Spanish, Italian, German and French. Be part of it!

If you have achondroplasia and are 12 years of age or older, or you are a parent/caregiver of a child with achondroplasia under the age of 12 years, please complete this survey until the 10th June 2024.

Take part here!

The results of this survey will be presented at the International Achondroplasia Workshop "Long bone pathology in children with Achondroplasia" which will take place within the scope of the 11th International Conference on Children's Bone Health - ICCBH, an event scheduled for June 22 to 25, 2024 in Salzburg, Austria.

An open access report will also be made available online.

Information: the survey is anonymous and no personal data will be shared. Thank you for participating. If you have any questions, please contact This email address is being protected from spambots. You need JavaScript enabled to view it.
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Thank You.