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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"
The Brod Group has more than thirty years of experience conducting real-world, patient-centered research studying conditions to know more about how it impacts patients lives. Meryl Brod coordinates a committed team in the development of this work towards better understanding achondroplasia. At this stage, the study is going to be conducted in the USA, but the survey will be taken to more countries in the second stage.
The focus is that the survey results will help doctors and researchers understand how having achondroplasia can impact children and their parents.

This is an opportunity to share your vision and real-life perspectives as a parent, towards better understanding achondroplasia.

To complete this study, TBG team is seeking 15 parent participants for a 1-hour telephone interview.

To participate you need to:
  • Live in the United States - USA
  • Have a child with achondroplasia between the ages of 5 to 12 years.
  • Be an adult, aged 18 years or older
  • Be involved in the day-to-day care of the child with achondroplasia.

For your time and real-life knowledge to contribute to the study, TBG will give an honorarium of USD $75 for a completed telephone interview.

Contact

If you are interested in participating in the study or have any questions about the study, please contact Jane Beck, a Senior Research Associate with The Brod Group, via email at This email address is being protected from spambots. You need JavaScript enabled to view it. or by telephone at (415) 317-3987.

Read the Study Flyer here.

 

 

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