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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

3rd ICCBH International Achondroplasia Workshop | ERN BOND

An ICCBH 2024 pre-conference workshop will be held on June 22, 2024 (Salzburg, Austria). This event will focus on "Pathologies of the long bones in children with achondroplasia".

The "achondroplasia working group", made up of clinicians, researchers, specialists and representatives of people with this condition, has organized an important programme that will explore what is known about the underlying pathophysiology and treatment of appendicular skeletal pathology. The aim is also to debate the pros and cons of bone lengthening in people with this condition, hearing positions for and against this procedure.

The event is organized by the International Society for Children's Bone Health and ERN BOND, with the participation of the ANDO, BKMF and AISAC associations.

See the program here.
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