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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

The International Conference on Children's Bone Health will host a pre-meeting workshop on foramen magnum stenosis in children with achondroplasia, directed at health professionals who manage groups of children with achondroplasia and are involved in the decision-making process around foramen magnum stenosis.


Beyond Achondroplasia's founder and writer, Inês Alves, is contributing to this workshop, as part of its organization.


This workshop will cover what is known about the underlying pathophysiology of foramen magnum stenosis and how to best monitor for this complication. It will be held on the 22nd of June from 7:30 to 11:50 in Salzburg, Austria. You can check the programme here.


Be sure to attend by registering here!






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