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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

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The 9th International Conference on Children's Bone Health (ICCBH) will take place in Salzburg, Austria from th 22nd-25th June 2019. It will cover a diversity of topics surrounding bone health in children ranging from physical activity to bone development and rare bone diseases.


it aims to bring together scientists and clinicians from all over the world to discuss the growing skeleton in health and disease, allowing the participants to update on the current approach to pediatric bone science.

View the programme here and register here.


Beyond Achondroplasia's founder and writer, Inês Alves, is contributing to the rare bone disease section with a pre-meeting workshop to discuss the optimal way to monitor for foramen magnum stenosis and explore the pathophysiology of this condition. This workshop is directed at clinicians who manage groups of children with achondroplasia and more specifically, who work with foramen magnum stenosis. View the full programme here and register until the 3rd of May here. Space is limited, so be sure to save your seat by registering.



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