Partnerships
ANDO Portugal represents and supports people with skeletal dysplasias in Portugal. It is a growing organization that has already accomplished a lot of things, including helping in the establishment of a health center for rare bone diseases. Their website is exclusively in Portuguese and most of their information is specific for Portugal. They had an important role in the foundation of Beyond Achondroplasia and have provided a lot of support.Visit their website here.
ALPE Foundation is the biggest patient association for achondroplasia in Spain, with a big presence internationally. Their website has a lot of interesting information about achondroplasia, ranging from medical and therapeutic to social and educational information in English, Spanish and Portuguese.
Check it out here.
A blog where you can read about all sorts of topics relating to diseases (rare, mental, cancer, etc.), such as news, parenting tips, lifestyle tips, personal stories and much more. You can also contribute with your own story.
Check it out here.
This website will help you learn more about your disease. You can ask questions to its search engine, or search the disease database to learn about most genetic diseases, and get answers to common questions. You can also contribute with your own story.Check it out here.
