Beyond Achondroplasia

Growing together with Clara

October 10, 2013
by inesp.alves
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Sleep apnea – new reviews

Searching about this very common theme around parents, but not that well understood, I found a recent article publish at the Journal of clinical sleep medicine, that has very explicit points about the subject. A Three-Month-Old Achondroplastic Baby with both Obstructive Apneas … Continue reading

July 12, 2013
by inesp.alves
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Anterior fontanelle bulging

Clara now shows one sign of increased intracranial pressure: for the last three days, her anterior fontanelle is elevated. Fontanelles are soft spots on a baby’s head which, during birth, enable the bony plates of the skull to flex, allowing … Continue reading

May 17, 2013
by inesp.alves
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Second CAT scan

Two weeks ago, Clara “had to do” a second CAT scan. Her neurosurgeon is still apprehensive but a little bit less now, after seeing the images of this CAT scan and the fourth transfontanelar ultrasound. There is no signs of … Continue reading

May 1, 2013
by inesp.alves
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Another day at the hospital

Yesterday, 30 April, Clara did a third transfontanelar ultrasound at D. Estefânia hospital. The ultrasound keeps showing an external hydrocephalus without sudden increase. It looks like to be benign and related to her condition. This kind of hydrocephalus is considered as a self-limiting … Continue reading

April 21, 2013
by inesp.alves
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Hydrocephalus / Hidrocefalia

Last tuesday, Clara had an appointment with her neurosurgion, and the doctor oppinion was that her frontal fontanel had a little bit more tension than the last time he observed her. So he wanted to see another transfontanelar ultrasound. Another … Continue reading

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