Beyond Achondroplasia

Growing together with Clara

September 25, 2014
by inesp.alves
1 Comment

Anual MRI

Since the surprise from the results of the first MRI, when Clara was 9 months old, that anxiety was always there on the other two times Clara was submitted to this exam. The sedation procedure with inhalatory anesthetic is smooth and painless … Continue reading

April 20, 2014
by inesp.alves
2 Comments

Stages of implementation of BMN-111 in a short summary

BMN 111 Clinical Studies in Achondroplasia (information by: BioMarin)   1-Double-Blind, Placebo-Controlled Phase 1 Study (Protocol 111-101) Results of a two-part, double-blind, placebo-controlled Phase 1 study (Protocol 111-101) conducted in 48 healthy adult volunteers demonstrated that systemic exposure to BMN … Continue reading

January 4, 2014
by inesp.alves
0 comments

Control MRI

Yesterday, 3 rd January, Clara did a post-surgery MRI, at last! The pediatric hospital where Clara goes, Estefania hospital, has a waiting list of 6 months for MRI, so the delay was substantial. She has been very well after the surgery with … Continue reading

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