Beyond Achondroplasia

Growing together with Clara

Far from the tree


I’ve been reading this amazing book for a while now.

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It´s dense, but clear. An excelent book by Andrew Solomon. And it open ideas wider than I could imagine. It as become a moment for pause in my days.

Now, we face moments for pause in our lifes too. Clara´s last CT scan showed no improvements is her hematoma. Quite the contrary. The hematoma seemed to dislocated to one specific area and not is 16mm wide and producing a more significant compression on her left side brain.

Clara will most certainly need to go under surgery. The last days, I´ve read more than 20 scientific papers about the subject, the eligible procedures, all the postsurgical complications…well, and really bothers me to realise that there is no consense on the approach: if a twist drill craniotomy or a burr hole, with drainage or not. Or even a subduralperitoneal shunt.

After all, a hole in the skull is always a hole in the skull… A chronic subdural hematoma is a rare event with an average of 1 case for 100.000 people, mainly older people.

This situation seems another step “far from the tree”.

Well, Clara did the CT awake. And to put aside the possibility of having coagulation disorders, she had 5 blood collection tubes taken too. She behaved graciously in all the occasions.

Tomorrow is the day to know the blood test results and to decide what the next step.

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Moments after the CT scan and ready for breakfast.

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