July 31, 2017
by inesp.alves
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In 2014, several Reference Centers in France dedicated to diseases involving the same organs, created OSCAR, the French network of rare diseases of bone, calcium, and cartilage. Citing Dr. Geneviève Baujat (Necker-Enfants Malades hospital, Paris) “The aims are to expose … Continue reading
May 23, 2016
by inesp.alves
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Mauro Banfi is a physiotherapist who also has a degree in osteopathy, from the College Osteopathique de Provence – Marseille, France. I meet him recently during the AISAC congress. AISAC is the Italian Association for the Information and Study of Achondroplasia. In this … Continue reading
September 21, 2015
by inesp.alves
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Children with achondroplasia usually have strategies to pass by different phases of gross motor skills acquisition. In the article “Development in children with achondroplasia: a prospective clinical cohort study” Ireland, P. J., Donaghey, S., McGill, J., Zankl, A., Ware, R. S., … Continue reading
May 22, 2015
by inesp.alves
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This Monday, Clara had a routine appointment with her physiatrist. And the doctor was really impressed and the medical evaluation was very positive! I´m very glad how her lower back is now and her elbows too and generally with her … Continue reading
May 7, 2015
by inesp.alves
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In this YouTube link, powered by Fundación ALPE achondroplasia, there is a list of videos for postural and motor work development, for babies and children with achondroplasia. Although the titles are in spanish, they are easy to follow in a … Continue reading
January 12, 2015
by inesp.alves
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Pushing a doll stroller its one of the latest physical therapy exercises Clara does with her therapist and she really enjoy it. Now she has her own doll stroller and she plays with it a lot. “Pushing toys provide a … Continue reading
June 24, 2014
by inesp.alves
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Yesterday, Clara had another appointment with her physiatrist. Four months after the last appointment, her physiatrist doctor found that Clara developed better protective reflexes and her whole locomotion structure was greatly improved. The doctor report had the following observations: -21 months-old baby -Slight … Continue reading
June 5, 2014
by inesp.alves
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NAVARRO et al. (2006) published the article “Use of hydrotherapy in the socialization and prevention of complications in children with achondroplasia“. This was a report of the use of hydrotherapy, twice week for 1 month, as a treatment for a 3-year-old child with achondroplasia … Continue reading
March 22, 2014
by inesp.alves
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In continuity with the latest post, the Baltimore corset, the physiatrist doctor indicated specific physical therapy stimulation exercises, but any child with achondroplasia can ou should have this physical stimulation. exercises The physical therapy stimulation program works to improve the tone and … Continue reading