Beyond Achondroplasia

Growing together with Clara

September 23, 2018
by inesp.alves
3 Comments

First day of school – adaptations and challenges

The 17th September 2018 was also a very important day for Clara: it was the first day of school. And what a thrill! And before heading to school that morning, there was a very long process of transition. Clara was … Continue reading

July 10, 2016
by inesp.alves
0 comments

Basic indications to handle a baby/young child with achondroplasia

1. Avoid devices that bend the back: soft infant carriers, infant swings, umbrella strollers and other soft devices; 2. Use hard backed carriages, strollers and supportive devices; 3. Support the baby’s head and back of the neck at all times; … Continue reading

January 3, 2015
by inesp.alves
5 Comments

2015

The first day of 2015 is for nature, just another day for the earth cycle. But for the human civilization, this is a time for decisions, motivations, thoughts and determinations. This year is very promising! But for sure, we have to … Continue reading

August 30, 2014
by inesp.alves
6 Comments

Two years and counting

Two years have passed since this instant, when Clara was born. The perception of time passing has such an amazingly personal and unique touch and ability to slow or fast our nature clock. And passing by all these days and … Continue reading

May 13, 2014
by inesp.alves
4 Comments

Sharing moments, with elegance!

Clara, now with 20 months old, wants to walk alone more and more each day. With calm, she is taking well thought steps each time and rediscovering her world. She has a strong attitude, is curious, insightful and obviously likes to … Continue reading

Sitting without support

February 26, 2014 by inesp.alves | 2 Comments

Each new step, has such a marvelous taste. I´m not in a rush for her be capable do this and that. I just want to capture and taste all these moments. Now she can sit alone! And yes, I´m joyful!
People tend to compare their children physical characteristics and their achievements since they are born with other children. With achondroplasia or average height childs.

Clara hasn´t to be better than anyone neither she has to do this and that before other child with achondroplasia. I´m not raising her in that perspective of comparison. I just want her to grow the healthier as possible, as a complete person with her own capacities and with her own goals.
Now, she is just a delightful baby, enjoying every moment and that simplicity that she has in her life and that pureness is just the best of being a child!

Achondroplasia without prejudice

January 31, 2014 by inesp.alves | 0 comments

I just had to share this brand new video from your friends of Alpe Foundation.
When I knew about Alpe, I contacted them right away and the most joyful person answered back: Carmen Alonso. A few months later, in June 2013, we did a 1700 km car journey with Afonso and Clara to meet them.

Carmen and all Alpe team received us with open arms, gave us support, important contacts, knowledge based on experience and above all, hearts full of good feelings and true friendship. We felt at that time so must cherished by people that we didn´t know until that point. The feeling of belonging was overwhelming!!!

Alpe have done an impressive and relevant work with families who achondroplasia visited.

Thank you!

December 2, 2013
by inesp.alves
2 Comments

Getting up by herself!

Some days before, Clara supported herself in a 20 cm cube at the nursery. And to celebrate and remember her 15th month, Clara gave a huge moment to us all! She got up, using the TV table, much higher than … Continue reading

Translate »