Beyond Achondroplasia

Growing together with Clara

June 24, 2014
by inesp.alves
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Physical rehabilitation update

Yesterday, Clara had another appointment with her physiatrist. Four months after the last appointment, her physiatrist doctor found that Clara developed better protective reflexes and her whole locomotion structure was greatly improved. The doctor report had the following observations: -21 months-old baby -Slight … Continue reading

June 5, 2014
by inesp.alves
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Hydrotherapy in achondroplasia

NAVARRO et al. (2006) published the article “Use of hydrotherapy in the socialization and prevention of complications in children with achondroplasia“. This was a report of the use of hydrotherapy, twice week for 1 month, as a treatment for a 3-year-old child with achondroplasia … Continue reading

May 13, 2014
by inesp.alves
4 Comments

Sharing moments, with elegance!

Clara, now with 20 months old, wants to walk alone more and more each day. With calm, she is taking well thought steps each time and rediscovering her world. She has a strong attitude, is curious, insightful and obviously likes to … Continue reading

April 28, 2014
by inesp.alves
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Days to enjoy better

This last couple weeks have been intense, filled with new challenges. Clara started to take her first steps alone! She also had another sleep study (the fourth) and the report was unacceptably inconclusive (and I will address this theme here soon). … Continue reading

March 12, 2014
by inesp.alves
2 Comments

A different approach for each child

Each child is a unique individual, with it´s own singularities, But when we face, as parents, a situation of a having a child with a rare condition, we expect support from doctors. We expect that they will give our child … Continue reading

December 2, 2013
by inesp.alves
2 Comments

Getting up by herself!

Some days before, Clara supported herself in a 20 cm cube at the nursery. And to celebrate and remember her 15th month, Clara gave a huge moment to us all! She got up, using the TV table, much higher than … Continue reading

November 25, 2013
by inesp.alves
2 Comments

Standing up

One of Clara´s latest conquest is her maintaining leg strength! While trying to climb to some point, now she can, for some seconds, to keep herself in that position. So good! I enjoy each day more this “step my step” capture … Continue reading

November 14, 2013
by inesp.alves
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Before going to bed

Tonight it was the first time both kids brushed their teeth together! Clara is discovering how she likes when the tooth-brush tickles her gums. And she also wants to hold the brush and she can move it over her teeth … Continue reading

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