March 25, 2015
by inesp.alves
1 Comment
Lucas is a 12 years old spanish boy who is crossing the lengthening process. This is a short film about one of his days. He is brave. He makes others feel braver… No need of translation. Some words from … Continue reading
February 5, 2015
by inesp.alves
2 Comments
There are many positions a person can adopt to sleep. This article will make the approach to back and stomach sleep positions (supine and prone). “In 1992, the American Academy of Pediatrics released a statement recommending that all healthy infants be … Continue reading
January 11, 2015
by inesp.alves
0 comments
This recent publication : “The etiology of short stature affects the clinical outcome of lower limb lengthening using external fixation“, by S.Kim et al, Department of Orthopaedics, New Jersey Medical School, published in March 2014, the authors made a systematic review … Continue reading
October 17, 2014
by inesp.alves
2 Comments
During three full days, the V International Congress around Achondroplasia and other Skeletal Dysplasia took place in the north of Spain, very well-organized by Alpe Foundation. Several world-renowned experts attended, giving one or more lectures, over 500 people registered, mainly parents … Continue reading
September 25, 2014
by inesp.alves
1 Comment
Since the surprise from the results of the first MRI, when Clara was 9 months old, that anxiety was always there on the other two times Clara was submitted to this exam. The sedation procedure with inhalatory anesthetic is smooth and painless … Continue reading
September 15, 2014
by inesp.alves
0 comments
We are just two days of this great event and I’m honored to have been chosen to participate as a media partner. The Orphan Drugs Summit is the leading rare disease event in Northern Europe. A well-established platform where pharmaceutical companies … Continue reading
September 5, 2014
by inesp.alves
5 Comments
Alpe Foundation, one of the most important spanish and european organisations for achondroplasia, is promoting the 5th Congress, that will take place in north of Spain, Gijon, on the 11th, 12th and 13th October 2014. Their webpage is in spanish … Continue reading
August 17, 2014
by inesp.alves
1 Comment
Lately, I´ve knew about other children with Clara´s age and with achondroplasia that had to undergone emergency cervico-medullary decompression surgery. I know also that some parents observe strange signs in their children without recognizing them to be neurologic alterations. I … Continue reading
July 24, 2014
by inesp.alves
1 Comment
Rarely I´ve mentioned here the hard and slow road of limb lenghtening. My first research on achondroplasia was at the day we received the genetic report confirming Clara had achondroplasia. Some moments get engraved in our memories in the hardest … Continue reading
July 17, 2014
by inesp.alves
5 Comments