Beyond Achondroplasia

Growing together with Clara

August 30, 2015
by inesp.alves
1 Comment

Sleep study – annual control

Last 28th July, Clara did her fifth sleep study. She was 35 months-old. This exam was done with video monitoring. She was excited to sleep that night at the hospital. But it was a quite tiring night. It was a hot … Continue reading

May 6, 2014
by inesp.alves
1 Comment

Sleep study and misleading medical report

Some medical reports can give us misleading results. So, during this path, I have confirmed once more how important is to be alert and have a critical spirit to analyze the information provided to us by doctors. And if someone don´t feel in a … Continue reading

April 28, 2014
by inesp.alves
1 Comment

Days to enjoy better

This last couple weeks have been intense, filled with new challenges. Clara started to take her first steps alone! She also had another sleep study (the fourth) and the report was unacceptably inconclusive (and I will address this theme here soon). … Continue reading

October 1, 2013
by inesp.alves
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Taking a deep breath with arms wide open

Clara is breathing better! Those words can´t translate the pure joy I felt when I saw the sleep study report and read: “Diagnosis: Mild sleep apnea /hypoapnea, specially positional. Clear improvement from the first study”. It was Christmas some months … Continue reading

September 15, 2013
by inesp.alves
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3rd sleep study

Last friday, we went to Lisbon after our working day, to be at 9pm at St. Marta´s Hospital, where sleep studies are done. Clara went there for a technician place in her all the devices for the a simple sleep … Continue reading

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