March 21, 2015
by inesp.alves
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Since September we lived with a new short-term goal: solve the hematoma problem. It have been quite strange months, almost like living in a limbo, trying to do our best to prevent new falls and head bumps. It was hard. … Continue reading
October 10, 2014
by inesp.alves
2 Comments
A child with achondroplasia has, among other body characteristics, a large and heavy head and disproportional short extremities (arms and legs), increasing the difficulty to control gait. For that, the probability of hitting the head harder while walking, playing or just … Continue reading
October 3, 2014
by inesp.alves
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Two days ago, Clara had 3 routine appointments scheduled with her orthopedist, ENT and neurosurgery assistant doctors. She had a MRI done on September 10th and all seemed to be just fine. But it wasn´t. Clara´s MRI showed a very clear … Continue reading
April 7, 2014
by inesp.alves
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A sleep study type 1 is a painless test done in a sleep center of hospital that records the brain waves, heart beat, and breathing during sleep. It also records eye and leg movements as well as muscle tension. It … Continue reading
August 23, 2013
by inesp.alves
1 Comment
Yesterday, Clara had for the first time, a physical therapy session. She will keep having regular sessions from now on. I was very pleased with the physical therapist (Ana Caixa), with her approach, very calm, great interaction with Clara, that … Continue reading
May 1, 2013
by inesp.alves
0 comments
Yesterday, 30 April, Clara did a third transfontanelar ultrasound at D. Estefânia hospital. The ultrasound keeps showing an external hydrocephalus without sudden increase. It looks like to be benign and related to her condition. This kind of hydrocephalus is considered as a self-limiting … Continue reading