One of achondroplasia caracteristics is midface hypoplasia, a facial dysmorphology. Hypoplasia is the underdevelopment or incomplete development of a tissue or organ. In this case, midface hypoplasia (blue region in the image) is the maxillary bone region hypoplasia and or depressed nasal bridge. In … Continue reading →
Some medical reports can give us misleading results. So, during this path, I have confirmed once more how important is to be alert and have a critical spirit to analyze the information provided to us by doctors. And if someone don´t feel in a … Continue reading →
A sleep study type 1 is a painless test done in a sleep center of hospital that records the brain waves, heart beat, and breathing during sleep. It also records eye and leg movements as well as muscle tension. It … Continue reading →
This photo was taken this night, around 3 am. Clara was sleeping peacefully, and her oxygen levels were that great (98% saturation) and her heart beat, just good too, 104 beats per minute. No CPAP mask for 2,5 months!!!
Since 2 nights ago, Clara slept without using the CPAP because the oximeter gave good oxygen levels all night. So good! Each night without it is a small step for her airway improvement. But this past night, she had to use it for several hours.
It is hard to explain the air pressure that comes from the devide, but by the sound of it, I think you can understand. But wearing it is much harder than what can be imagined to be!