Beyond Achondroplasia

Growing together with Clara

June 5, 2014
by inesp.alves
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Hydrotherapy in achondroplasia

NAVARRO et al. (2006) published the article “Use of hydrotherapy in the socialization and prevention of complications in children with achondroplasia“. This was a report of the use of hydrotherapy, twice week for 1 month, as a treatment for a 3-year-old child with achondroplasia … Continue reading

May 25, 2014
by inesp.alves
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Artificial growth place

I found this poster abstract and I considered it quite interesting, although I couldn´t find anything more written about this. This is an idea and could be another approach of study for the treatment of achondroplasia.   Poster Communications Enlargement … Continue reading

May 13, 2014
by inesp.alves
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Sharing moments, with elegance!

Clara, now with 20 months old, wants to walk alone more and more each day. With calm, she is taking well thought steps each time and rediscovering her world. She has a strong attitude, is curious, insightful and obviously likes to … Continue reading

May 11, 2014
by inesp.alves
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Achondroplasia: A Model for Clinic-based Research

This is a quite interesting lecture by Prof. Richard Pauli, released by University of Winsconsin School of Medicine and Public Health. It´s a pleasent session, easy to hear and simplifies some medical and scientific information.  

May 6, 2014
by inesp.alves
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Sleep study and misleading medical report

Some medical reports can give us misleading results. So, during this path, I have confirmed once more how important is to be alert and have a critical spirit to analyze the information provided to us by doctors. And if someone don´t feel in a … Continue reading

May 1, 2014
by inesp.alves
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International Clinical Trials’ Day and ECRAN Project for understanding clinical trials Meeting, 20-21 May, Luxembourg

  ECRAN: European Communication on Research Awareness Needs The ECRAN project has been funded by the European Community in order to improve the EU Citizens’ knowledge about medical research and support their participation in independent and multinational clinical trials. ECRAN  aims … Continue reading

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