Beyond Achondroplasia

Growing together with Clara

November 1, 2014
by inesp.alves
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Statins for achondroplasia update

I contacted Professor Noriyuki Tsumaki, the head researcher for the study of the use of statins in achondroplasia, also mentioned in a post here. I kindly got  the following asnwers: “Statins should not be used in children because statins decrease cholesterol, … Continue reading

April 28, 2014
by inesp.alves
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Days to enjoy better

This last couple weeks have been intense, filled with new challenges. Clara started to take her first steps alone! She also had another sleep study (the fourth) and the report was unacceptably inconclusive (and I will address this theme here soon). … Continue reading

September 8, 2013
by inesp.alves
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Summer days

After this summer vacation, we sum many good moments, bright smiles, lots of water, sun and sand, new experiences, timesharing and baby steps to new milestones! The greatest time was at the pool. Clara enjoys water so much! The indoor … Continue reading

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